From Katie to Kate has come to an end. Please join me at Kate Morell for a new beginning.
“Invisibility and ignorance are the antithesis of equality, empathy, learning and change, so your bravery in this battle forges the way for so many invisible people to speak up in future.” – Kerrie It has been quite a trip for me since being diagnosed with Usher syndrome at fifteen. As I lose my sight, traveling […]
The last twenty six days have been an emotional conflict, to say the least. I know. I had said in my first ‘Own the Equinox’ post that I am ready to step out and speak up about Usher syndrome. I did also add that it wasn’t without fear, without doubt, without hesitation. Let me tell […]
This is an important day for me. As you know, today is Usher Syndrome Awareness Day. And I have Usher syndrome. Now please, I know this day isn’t all about me. But for a moment, can we please pretend it is? Thank you. It really is an important day for me. Standing here, as a […]
As I use my cane for Ushering Kate, I have been trying to articulate in my mind why it is so hard. And, it is hard. So hard, that I still believe it would be easier to become a social recluse. To never go out unassisted. To never disclose my condition. But I also know […]
My most treasured possession of all is this photo. It makes me both incredibly happy, and sad. The little girl is me, Katie, from when I was maybe five years old. The little boy is my brother. I treasure this photo as I see myself without a care in the world. Giggling while eating an icy pole, as all […]